Scientists, researchers, and volunteers all have a part to play in advancing clinical trial research.
- Scientists identify and develop potential ways to diagnose, monitor, and treat lupus.
- Researchers design and conduct the studies to test the scientists’ methods
- Volunteers are the lupus warriors who take part in the studies.
It’s thanks to the collaborative efforts of these groups that we have ways to identify, diagnose, and treat lupus. It is also vital that racial disparities are prevented so that everyone has a chance to participate in a clinical study, especially when lupus affects Black, Hispanic/Latino, Asian, Native/Indigenous women at a much larger rate than their white counterparts.
Clinical trials help to determine the safety and efficacy of a new treatment to help researchers figure out what works and what doesn’t work. They, along with knowledgeable doctors, can determine if a drug/treatment’s benefits are outweighed by any possible side effects.
The Lupus Research Alliance (LRA) aptly points out that clinical trials may be a lupus warrior’s chance to get treatment that they normally might not have the access to (financially or geographically), specialized medical care & attention, and the chance to learn about new medicines. Participants also can feel a sense of personal pride & satisfaction in helping advance medical research for future lupus warriors.
With every decision that can impact your health, it is of the utmost importance that you speak with your physician regarding any changes in treatment, medication, and care.
Helpful links
- Clinicaltrials.gov – a database of clinical research studies that provides information about studies to healthcare providers, researchers, and the public. The listings can include information such as the trial’s purpose, participation eligibility, locations, and contact information. Try searching specifically for “lupus”, keywords, locations, etc. to narrow down your search.
- Lupus Therapeutics – the clinical affiliate of LRA, their mission is to advance lupus clinical research and clinical care. They also have an FAQ section regarding clinical trials.
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